creidylad: (Default)
creidylad ([personal profile] creidylad) wrote2007-01-26 09:37 am

Meanwhile, the Children...

So, I should also write a bit of an update about the girls.

Gwen: Gwen is doing really well. She has her assisted speaking device now (the Vanguard), which is a bit large and clunkly but will soon be replaced by the Vantage -- the same device but smaller and more portable, and is learning how to use it at a steady clip. The other day she wanted pasta soup and found the 'macaroni' icon then went to the abc screen and spelled out S O U O P. Then she hit the button to make it all be said together: Macaroni Soup. She giggled and hit it a few times. I was insanely proud -- I had no idea she knew how to spell soup! (We of course got her pasta soup, pronto!) She's intensely clever, but I worry all the time she's off in here own world too much and is so used to the idea that nobody will understand her abstract thoughts and questions that she's given up on trying to communicate them. For instance, her wonderful uncle, [livejournal.com profile] zantony, gave her The Giving Tree for the holidays, and we read it together. Afterwards, she was making great eye contact and looked so contemplative, and was slowly and thoughtfully saying a lot of things, half-questions, half-statements. In these I could understand the word 'tree' repeatedly but... that was it. I tried as hard as I could to make supportive and encouraging responses and tried to get her to repeat things to give me a second chance to understand but... she wandered off. Sigh. And the Vanguard ("talk box") is not yet helpful in situations like these as she doesn't yet know how to express complex, abstract thoughts with it. (neither do I for that matter. I worry it really can't be used that way.) She remains very interested in shepherding her little sister -- both for the sake of safety and for the sake of keeping her out of her own toys.

Glory continues to be a wonder -- but this week a very congested and mildly flu-ridden wonder. She has many words -- words for fish and cat and bear and book and apple and eggs and a host of other things. Fish are her favorite thing ever -- so much so that [livejournal.com profile] ibizar and [livejournal.com profile] woldkill gave us a 10 gallon tank they weren't using and we now have it stocked with three rosie barbs and 2 tricolor "sharks". Running into Christopher's office to watch the fish antics is more or less Glory's favorite activity apart from chasing her big sister around the house. She's into everything, she loves to be read to, to do her peg puzzles, stack a few simple blocks... a host of things. Her other absolutely favorite thing is music of any kind -- she loves to play her simple percussion instruments, or to hit the music buttons on battery toys and bop around. She walks forwards and backwards and climbs flights of stairs and couches and I am pretty sure would fly if she could sprout wings.

And now... I'm cutting this a bit short, as Mom is about to come over and relieve me so I can take a shower. She's also bringing hot bagels. She really is awesome. I just wish we could talk instead of all the ranting and lectures.

[identity profile] juliemaru.livejournal.com 2007-01-26 03:30 pm (UTC)(link)
So happy things are sailing along at your house!!! What beautiful little people you're blessed with!

[identity profile] creidylad.livejournal.com 2007-01-26 06:19 pm (UTC)(link)
Thanks!

[identity profile] woldkill.livejournal.com 2007-01-26 04:26 pm (UTC)(link)
Glad to hear the aquarium worked out :)

[identity profile] creidylad.livejournal.com 2007-01-26 06:34 pm (UTC)(link)
I've been meaning to call you and rave about how much we love it. I need to take a picture -- thought it's pretty unexciting so far.

[identity profile] epilady.livejournal.com 2007-01-26 04:57 pm (UTC)(link)
Now that he's on the east coast, it occurs to me that you might like to chat with my old friend [livejournal.com profile] mattblakk, whose beautiful son Blake is autistic and progressing marvelously as he grows. Some similar stories, some strategy-sharing, perhaps?

Thank you for the update!

[identity profile] creidylad.livejournal.com 2007-01-26 06:35 pm (UTC)(link)
Sure! Though keep in mind that Gwen's not even on the autistic spectrum... some of her difficulties do present similarly, though they are rooted in entirely different issues.

[identity profile] epilady.livejournal.com 2007-01-26 07:00 pm (UTC)(link)
Oh, I am pretty aware of Gwen's difference from autistic kids. But Matt does talk about some similar issues and it never hurts to share stories!

[identity profile] lollardfish.livejournal.com 2007-01-26 05:09 pm (UTC)(link)
This is good to read. Holland really is pretty nice, isn't it.

Shannon's Mom likes to come over and rant about how people just don't do things for new parents anymore, like bring food or clean up or anything.

Of course, she's never brought food or offered to help around the house ...

[identity profile] creidylad.livejournal.com 2007-01-26 06:36 pm (UTC)(link)
Holland is indeed a lovely place.

I am pretty sure Shannon's Mom and my mom should form a club. Also, this is baffling to me, as it sounds from [livejournal.com profile] minnehaha's journal that you guys have a ton of support and help from friends, which is encouraging to hear.

[identity profile] lollardfish.livejournal.com 2007-01-26 07:04 pm (UTC)(link)
We have tons of support, but it isn't from Shannon's dad's family, which is I think what she is picking at. I don't really care except when she's in my living room.

[identity profile] missionista.livejournal.com 2007-01-26 07:44 pm (UTC)(link)
Fantastic news on all accounts, and I am especially psyched for Gwen! I bet that was the best tasting macaroni soup ever.